"Tubie Friends™ was started by a group of moms whose children have been or are currently using a feeding tube as a primary source of nutrition. We’ve seen what a comfort a Tubie Friend™ can be during a hospital stay, procedure or just when they need a friend. In addition to bringing comfort to the child, these Tubie Friends™ can also be used as a teaching tool for family, friends and caregivers. Our goal is to take the fear out of feeding tubes, one Tubie Friend™ at a time."
Faith & Friends' Vice President, Ann, is a Tubie Friends™ Surgeon, and Faith has Tubie Friend, Bearamy.
Click here to see a video of the work Tubie Friends™ does.
Faith & Friends' Vice President, Ann, is a Tubie Friends™ Surgeon, and Faith has Tubie Friend, Bearamy.
Click here to see a video of the work Tubie Friends™ does.
Andrea Bear was created to raise awareness about the beauty that is inside all
of us whether able bodied or not. Our vision is to see our organization in every
state and every country that will welcome our vision. We have released the
Andrea Bear to the public to have the amazing adventures that our children and
family members typically do not get to have.
of us whether able bodied or not. Our vision is to see our organization in every
state and every country that will welcome our vision. We have released the
Andrea Bear to the public to have the amazing adventures that our children and
family members typically do not get to have.
We are the place for families and professionals in Indiana to go to “ASK”
questions about children with special needs and to access information and
resources about a variety of topics such as health insurance, special education,
community resources and medical homes. (www.aboutspecialkids.com, retrieved February 24, 2012)
questions about children with special needs and to access information and
resources about a variety of topics such as health insurance, special education,
community resources and medical homes. (www.aboutspecialkids.com, retrieved February 24, 2012)
Faith went on her Make-A-Wish trip to Mickey's house (Disney World) in August 2011.
The Global Genes Project is broadly promoting the needs of the rare disease community, engaging the general public, garnering corporate support, under the "unifying symbol of hope" – the blue denim ribbon.
The Global Genes Project is a program of R.A.R.E. Project, a non-profit 501c3.
(www.globalgenes.org, retrieved February 24, 2012)
Faith's picture on The Global Genes Project site. Hope pictures were collected and made into a book given to genomic researchers on World Rare Disease Day.
"Damar Charter Academy is a groundbreaking new school dedicated to defining and implementing best practices for the public education of children with special learning needs in grades kindergarten through 12. It represents Indiana’s first public charter school to provide intensive, individualized, year-round educational programs and behavioral support services to students with autism and other intellectual and developmental challenges." (www.damarcharteracademy.org/about, retrieved September 6, 2011)
