It's been quite a month for our family after Faith's surgery for a tethered spinal cord. Her surgery went really well, although the surgeon said Faith's cord was thicker and fattier than normal. In fact, Faith went home three days after surgery. In hindsight, this may not have been the wisest choice ever. We didn't know at the time that she was brewing up an epic UTI when she went into surgery. She was a little pukey when we went home, but we thought it was just from the antibiotics. Um, no... Each day, Munchkin puked more and more until she was vomitting blood and looked super sick. Flashbacks from sepsis were running through our heads! We spent three days inpatient in Riley, and then were released with the antibiotic Levaquin (another devil drug!). The next day, Faith had a really scary seizure, so when our nurse came the next day, we went to the ER again. Faith was taken off Levaquin and put on IV antibiotics for almost eight days. We were never able to get her to tolerate the feedings we were doing before surgery, so we had to change her feedings. They're going 24hrs a day; she's not allowed to carry her backpack yet (too heavy after surgery) so we're having to follow her around all day carrying her backpack. She's still complaining of headaches, and we're not really sure what to do about this besides Tylenol. The doctors don't really seem to know why she's having the headaches.
On a positive note, Faith's doing really well with cathing three times a day; we can actually do it with just one person now! (huge improvement from needing at least three back in February and March) And Princess Faith started back to school last Tuesday, and is doing great. She stays in her wheelchair during school so she doesn't overdo it. Thus, our nurses are getting lots of exercise! :)
We still have a ways to go with other issues, but for now, things seem to be settling down.